Jenni Burton from the University of Glasgow is conducting a nationwide survey to estimate the number of people living with advanced dementia in care homes, how their care in funded, and the meaning of the term ‘advanced dementia’ from care home professionals perspective. The survey can be completed online or in person/over the phone with your local ENRICH Clinical Studies Officer. Only one response is needed per home from a member of staff. This is a short survey and shouldn’t take long to complete.

Upon completion of the survey, participants will be entered into a draw to win a pair of tickets with travel expenses and the cost of staff time (to enable staff backfill within the care home) to attend either the Alzheimer’s Scotland conference or the Scottish Dementia Research Consortium 2025 conferences.

If you have any questions, please feel free to contact the researcher on jenni.burton@glasgow.ac.uk ENRICH are contactable on tay.enrichscotland@nhs.scot.

Allison Scott from Glasgow Caledonian University is undertaking a study looking at the provision of foot care for people with advanced dementia in Scotland. You are eligible to take part in this if you:

• Have a family member, friend or care for someone with advanced stage dementia
• Are involved in decision making for this person

Participation involves completing an online survey which shouldn’t take any longer than 20 minutes. There is also an option to take part in an interview with the researcher following survey completion; this is on an ‘opt-in’ basis and not expected of everyone completing the survey.

If you are interested in taking part, please contact Allison Scott at Allison.Scott2@gcu.ac.uk, or go directly to the survey and enter the code KPDL9JHDX when prompted.

WATCH (Widening Access to Trials in Care Homes) is a UK wide trial aiming to produce best practice guidelines in recruitment of Care Home residents into vaccine trials. The guidance is being produced in collaboration with researchers, care home managers and ENRICH staff, amongst others.

People living in care homes are especially prone to infections and are more likely to become seriously ill when become infected. Many such infections can be prevented by safe and effective vaccines. However, vaccines are usually only tested in younger and healthier people, and we can’t be sure that they are just as safe, or work just as well, for people in care homes.

There are many reasons why vaccines are harder to test in people in care homes. For example, some people might have conditions like dementia which might make it difficult for them to give permission for research studies, and it might take longer for frail older people to provide answer to questions. Another example is that pharmaceutical companies may be reluctant to test their vaccine in people with multiple medical conditions as any flare-ups of the condition could be confused with side effects.

However, with the right guidance, all these problems could be overcome. Professor Roy Soiza from the University of Aberdeen and Professor Susan Shenkin from the University Edinburgh will be working with a team of expert researchers in the care home setting, and researchers with experience of running vaccine trials in hospitals to come together with people who work in care homes to discuss what all the barriers are, and how to overcome them. They will produce an expert guidance document that can be used by researchers to conduct these trials. The team will also volunteer to undertake vaccine trials during the project and attempt to recruit people from care homes in order to test out and refine the guidance further. 

This study is not currently looking for any participants but we will keep the website up to date with any further developments. 

Lucia Halamova from the University of Aberdeen is looking to speak to staff, residents and family/friends of residents about decision making around moving into care homes. The researcher would look to speak with those interested, either in person or on the phone/online. This would last around 30-45 minutes. The aim of the project is to eventually create a document such as a conversation guide or decision aid to help start early conversations and pre-emptive decision making around moving into care homes and help improve experiences of this. Everyone who takes part will be given £10 cash/voucher as a token of thanks for their time.

If you’re interested to find out more, please contact Lucy Halamova at l.halamova.23@abdn.ac.uk.