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Making Care Home Research Accessible

ENRICH (Enabling Research in Care Homes) Scotland aims to improve the quality of life, treatments and care for care home residents.The RICH (Research in Care Homes) Voices logo.

RICH (Research in Care Homes) Voices are the ‘Patient and Public Involvement (PPI)’ group for ENRICH Scotland, and started mid-2022. The group aims to include people living and working in care homes in research-related activities, but is open to all those with an interest in care home related research. Since the group’s conception, we have worked hard to find ways to make the groups ideas come to life, including the co-creation of a podcast, and this accessible research page.

Listen as members of the RICH Voices community discuss starting a Patient and Public Involvement (PPI) Group in care homes

This co-created page represents a key aspect of our ongoing PPI objectives to improve outreach and impact within our RICH Voices and Partners in Research (PiR) groups.

This page is a collection of RICH Voices work across ENRICH Scotland. This includes lay summaries, video, blogs, written work, podcast and an image library. We aim to make this content as accessible as possible to encourage anyone who has an interest in care homes to read about our research and the work of others, and we welcome your feedback and ideas. This furthers our goal of bringing together care home staff, residents and researchers to facilitate the design and delivery of research and to improve the quality of life, treatments and care for all residents.

We encourage all users to watch, read and share our content as widely as they would like.

We are in the process of developing this webpage, for any specific questions please contact tay.enrichscotland@nhs.scot.

Our Team

Martin Robertson l RICH Voices Core Team

“I was diagnosed in 2016 with PCA and want there to be meaningful research for me to do when I go into Care. Currently, I have been taking 360 photos of the village and going into the local Care Home with a VR Headset (both bought through ex Life Changes Trust Fund now administered by About Dementia) and the residents, once they get used to the Headset love seeing their old haunts.”

David Ross l RICH Voices Core Team

“I am a retired Engineer and carer for my late wife, and spent 36 years working and travelling overseas. Mixing with many different nationalities and cultures you develop a wider understanding and empathy with people who come from and live in totally different circumstances to your own. This gives you a greater appreciation of issues and problems that may arise, but doesn’t fully prepare you for dealing with a loved one struck down with a serious and debilitating form of dementia and the new challenges that presents. Committing your wife into full time care that very day of the Covid lockdown made me realise just how unprepared I was, but my experiences and resilience changed me and made me even more determined to battle for greater in-depth research and better conditions for our social care residents”

Lay Summaries

We aim to enable researchers to share findings, raise awareness, and bridge the gap between “everyday practice” and academia. A lay summary is a short piece of content used to explain research to members of the public. By co-creating these summaries, we can foster the outreach of wider academics and/or care home researchers to engage with people with lived experience by sharing findings and showcasing these outputs to have lasting impacts. We have integrated media tools (TypeFormEtherpad) and readability checkers (Hemingway Editor or WebFX) to allow real-time editing and comments on lay summaries.

We will invite people who are conducting care home research to share lay summaries of what they are doing and importantly, how it relates to everyday practice within a care home. If readers would then like to hear more detail about the work, contact details will be available. The use of this platform is designed to foster meaningful collaboration between researchers, care home stakeholders and RICH Voices members.

Read Lay Summaries

Video Content

Blogs and Articles

Podcast

ENRICH Scotland podcast flyer - full details of all information in the image provided in the text below.

We are in the process of creating a RICH Voices podcast, an idea generated by RICH Voices for provided accessible and accurate information about care home research. Our four-part podcast series that sets the scene of care home research, looks at the benefits of research involvement, explores the challenges for research in care homes, and look at the future for research in care homes. Podcasts are being recorded online as well as within care homes to capture a wide range of voices.

The four podcast episodes will focus on:

  • Setting the scene - care home research
  • Benefits and impact of research
  • Challenges and how to overcome them
  • Future directions for care home research

People can get involved with this series by asking and/or answering questions on the podcast; desiging a logo/branding for the series; and developing the content of episodes and questions to be asked.

Alongside the podcast, we have received some funding to co-create a film about what research participation in care homes can look like. We are hoping that be showcasing the range of research types and how they look in practice will help demystify research and increase people’s confidence in taking part.

ENRICH Scotland Newsletter

Image Library

As an output from our An Introduction to ENRICH Scotland video, we created an image library from extra footage. This content will be used in future ENRICH promotion.

We also received funds to purchase media equipment to showcase “what accessible science can look like”. This library will be continuously updated with images that are free to use. We will also upload any other relevant content such as, logos and posters.

Academic Publications

On the 6th September 2023 our paper was published online.  

This article describes the components of enabling research in care homes in Scotland and the research infrastructure the team are developing to enable more research, including clinical trials, to be carried out in Scottish care homes, and how this will benefit the residents, families and staff.

Further reading

Birt L; Lane K; Corner J; Sanderson K; Bunn D. (2023). Care-home nurses’ responses to the COVID-19 pandemic: managing ethical conundrums at personal cost: a qualitative study. J Nurs Sch.55:226–238. https://doi.org/10.1111/jnu.12855

Bradshaw A, Ostler S, Goodman C, Batkovskyte I, Ellis-Smith C, Tunnard I, Bone AE, Barclay S, Vernon M, Higginson IJ, Evans CJ, Sleeman KE. Provision of palliative and end-of-life care in UKcare homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy. (2023). Front Public Health. Mar 14;11:1058736. https://coi.org/10.3389/fpubh.2023.1058736

Burgher, T., Shepherd, V. & Nollett, C. Effective approaches to public involvement in care home research: a systematic review and narrative synthesis. (2023). Res Involv Engagem 9, 38. https://doi.org/10.1186/s40900-023-00453-2

Burton, J.K., Drummond, M., Gallacher, K.I. et al. Listening and learning: a qualitative study of Scottish care home staff experiences of managing COVID-19 between March 2020-August 2022.(2023). BMC Geriatr 23, 544. https://doi.org/10.1186/s12877-023-04251-z

Chapman-Wright J, Parnell SA, Bunn D et al. (2022) Perspectives: Nurses in care homes as advisors in research: benefits for all? J Res Nurs. Vol 27(4), pp401-405. https://doi.org/10.1177/17449871221103839

Cowdell, F., Heague, M., & Dyson, J. (2023). Barriers and facilitators to skin hygiene care and emollient use in residential care homes: Instrument design and survey. International Journal of OlderPeople Nursing, 18, e12550. https://doi.org/10.1111/opn.12550

Fang, M. L., Cranwell, M., White, B., Wylie, G., Wong, K. L. Y., Harter, K., Cosgrave, L., Moulton, M., Fulton, R., Sixsmith, A., & Sixsmith, J. (2023). Aging-in-Place at the End-of-Life in Community and Residential Care Contexts. University of Dundee. https://doi.org/10.20933/100001274

Finucane AM, Hulbert-Williams NJ, Swash B, et al. (2023). Feasibility of RESTORE: An online Acceptance and Commitment Therapy intervention to improve palliative care staff wellbeing. PalliativeMedicine. Feasibility of RESTORE: An online Acceptance and Commitment Therapy intervention to improve palliative care staff wellbeing - Anne M Finucane, Nicholas J Hulbert-Williams, Brooke Swash, Juliet A Spiller, Brigid Wright, Libby Milton, David Gillanders, 2023 (sagepub.com)

Gibson, G., McCabe, L., Wilson-Nash, C., et al. (2022). Evaluation of the ‘Connecting Residents in Scotland’s Care Homes’ Programme. https://tec.scot/sites/default/files/2022-09/CRSCH%20Executive%20Summary_FINAL.pdf

Johnston, L. (2023). Care homes: Data and digital readiness. Open Access Government, Jan 2023, 106-107. https://www.openaccessgovernment.org/article/care-homes-data-and-digital-readiness/149491

Law E, Ashwroth, R., Killin, L., Connelly, P. (2021) Motivating and constraining factors for research participation in Scottish care homes. Nursing and Residential Care 2021 23:4, https://www.magonlinelibrary.com/doi/abs/10.12968/nrec.2021.23.4.8#:~:text=Lack%20of%20time%20and%20workplace,the%20risks%20of%20research%20involvement.

Macgregor A, McCormack B, Spilsbury K, Hockley J, Rutherford A, Ogden M, Soulsby I, McKenzie M, Hanratty B, Forbat L. (2023). Supporting care home residents in the last year of life through'Needs Rounds': Development of a pre-implementation programme theory through a rapid collaborative online approach. Front Health Serv. 9;2:1019602. https://doi.org/10.3389/frhs.2022.1019602

Philip M Bath, Jonathan Ball, Matthew Boyd. Et al. (2022). Prophylactic Treatment of COVID-19 in Care Homes Trial (PROTECT-CH) MedRixv https://doi.org/10.1101/2022.08.29.22279359

Schoultz, M., McGrogan, C., Beattie, M. et al. (2022) Psychological first aid for workers in care and nursing homes: systematic review. BMC Nurs 21, 96. https://doi.org/10.1186/s12912-022-00866-6

Shepherd, V, Hood, K & Wood, F.  (2023) Planning ahead for research participation:  survey of public and professional stakeholders' views about the acceptability and feasibility of advance research planning.  BMC Med Ethics 24, 70 https://doi.org/10.1186/s12910-023-00948-3

Susan D Shenkin, Lucy Johnston, Jo Hockley, David A G Henderson, (2022). Developing a care home data platform in Scotland: a mixed methods study of data routinely collected in care homes,Age and Ageing, Volume 51, Issue 12, , afac265, https://doi.org/10.1093/ageing/afac265

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